kottke.org posts about Heather Kirn Lanier

Coming up short in pursuit of a SuperBaby

In SuperBabies Don’t Cry, Heather Kirn Lanier writes beautifully about the birth of her first daughter, disability, control, and acceptance.

By eight months Fiona developed a love for clapping. At nine months she had her first grand mal seizure. At eleven months she rolled from front to back. At one year old she weighed twelve pounds. During that first year, her syndrome revealed itself to be simultaneously life-altering and, in some strange way, just fine. A new normal. Her medical issues were manageable. The problem, it became clear, was mine: I wanted her different. The daily prayer inside me was an impossible wish to scrounge the earth and find that missing bit of her fourth chromosome. I imagined it was buried among fossils in an ancient, surreal sand dune.

Ten times this piece sent my thoughts spiraling out in all directions. I already know I’m gonna be thinking about this all week. (via @ftrain)


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