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kottke.org posts about Adam Pearson

Identical Twins Who Look Nothing Alike

posted by Jason Kottke   May 10, 2019

Adam and Neil Pearson are identical twins who have neurofibromatosis, a rare genetic disorder that affected the two of them quite differently.

“I was always aware that I had the same condition as him, but also fully aware that he had the facial disfigurement and I didn’t,” Neil says in the film. Adam suffers from benign tumors that began forming on his face when the Pearsons were boys. They grew progressively worse over time. In school, he endured much bullying-“one of the worst things a human can do to another human,” as he describes it in the film. As an adult, Adam explains that he can never go anywhere without being gaped at. Neil, meanwhile, appears physically unscathed but experiences neurological problems that severely impair his memory.

(via @luvmyptcruiser)